One week into the treatment with AFATINIB and Janet has virtually no pain in the back, nor any breathlessness on exertion, but is beginning to experience the predicted adverse effects of mouth ulcers and diarrhoea. As the specialist nurse who gave us the treatment said, it is a sign that it is working! However, both symptoms are pretty unpleasant, leading to restricted eating and weight loss of about 14 pounds.
We are using what we can to offset these effects (steroid cream, anaesthetic lozenges and gel, and anti-diarrhoea capsules), and trust they will settle down without affecting the treatment. Pray for strength to endure!